Friday 8 June 2012

US/UK summit on open health data

The culmination of our trip was the first US/UK summit on open health data.  The event was opened by Sec Sebelius and Andrew Lansley. After the initial round table discussion we broke into groups to look at prioritised areas that we could collaborate on. We will be writing these up but broadly these covered technical , patient and public participation and measuring clinical quality.  The energy and enthusiasm in the workshops was impressive and some really good bilateral work was going on.  We will kick off some work streams to deliver by Dec 2012.

I tended to dip in and out of the sessions to ensure they were all going in the same direction. I was really struck by a few ideas including work on a joint definition of quality and value, work on international indicator alignment, work on standards for using patient feedback and some great ideas around aligning registries. The technical work stream was particularly productive with the UK team led by Inderjit Singh being outstanding. More about this when we write it up.

Overall it has been an exhausting, stressful and intense few days, but also enormously rewarding. The UK team worked really well together and complimented each others skills and experience.

I look forward to organising a follow up - possibly in December in the UK ( weather permitting!)

Mark Davies

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